For information about local support groups, please email firstname.lastname@example.org or visit www.barrettswessex.org.uk:
Patient Support Services
BOC provides patient support in a number of ways:
- Encourage 'Friends of BOC' by means of subscription free local support groups who are invited to become affiliated to BOC but retain their independence. By doing this we offer our website and patients forum which give support to such groups
- Encourage and promote joint fundraising initiatives which can assist local support groups
- Provide a Medical Advisory Board to provide independent medical advice to BOC and support groups as required.
Barrett's Wessex, chaired by Chris Robinson, one of our Trustees, a regional support group of the national charity, Barrett's Oesophagus Campaign, continues to expand and thrive.
Barrett's Wessex is now expanding to establish a Bath/Bristol hub and a Bournemouth hub, whilst increasing support in Dorchester, Salisbury, Winchester, Portsmouth and Basingstoke.
A cyclist from Barrett's Wessex also undertook a marathon 2000 mile cycle journey unescorted across the Nullabor desert in Australia raising awareness via radio interviews.
The latest newsletter from Barrett's Wessex is available from the News page of their website: www.barrettswessex.org.uk.
The on-line patient support forum is also growing with 840 members currently, a quarter of whom have been active in the last 6 months. Thanks to the diligence of our web manager, we have been successful in eliminating the spam postings that have caused problems on other forum sites.
Most members live in UK but we also attract a significant number from overseas. Most new members find the forum following an internet search after being diagnosed with something they have never heard of. Most commonly they are worried about the chances of contracting cancer or seek dietary advice. Increasingly they tell us they are in their 30's or 40's. In a recent poll on the forum, 84% of responses were from members younger than 55. The BOC online forum far outstrips all comparable national and international forums (e.g healthcentral and mdjunction) receiving up to a dozen posts a day.
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