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GrahamB
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Quote GrahamB Replybullet Topic: RFA II - the burn is back!
    Posted: 21†Sep†2017 at 11:42am
Just checked in for my second RFA session. Hopefully as straightforward as previously. I shall, of course, update accordingly for all those in (or potentially in) the Burn Club.....
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chrisrob
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Quote chrisrob Replybullet Posted: 21†Sep†2017 at 11:49am
Good luck.
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steelee
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Quote steelee Replybullet Posted: 21†Sep†2017 at 1:31pm
Am due my 5th next month and I have found things get more painful with each session although may be my fault as I continue to eat and drink as normal straight away, still have 75% of original Barretts so some way to go get
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steveb8189
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Quote steveb8189 Replybullet Posted: 21†Sep†2017 at 2:15pm
Good luck Graham. I had my surveillance endoscopy yesterday - another knock out job with the sedation.

Steelee - were they expecting to get it all by now? I'm surprised it has taken so many sessions. The literature refers to most people needing one or two follow up sessions. It's good to find out some personal experience.
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steelee
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Quote steelee Replybullet Posted: 21†Sep†2017 at 8:43pm
Steveb, Iím not really sure, had a T1a cancer removed by EMR and another lump which was just HGD, I will ask at the next session but am happy to keep going with RFA as long as possible as really donít whant the Ďopí unless there is no option......
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GrahamB
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Quote GrahamB Replybullet Posted: 22†Sep†2017 at 8:16pm
Right then, done and dusted for the second time.

Propofol sedation so not much to say about the procedure but the results were ok.

Moderate improvement from last time, my C8M8 is now C4M7 so the RFA is having an effect. Expectation is that I will need another three or four sessions to clear the Barretts.

Recovery (so far) has been a little harder but that may be because I went back to work today rather than the day off I had after the first go. Fairly frequent discomfort, very tired and lots of wind!

Going to try and push the diet forward a bit faster this time, I was maybe too cautious last time and I need to find my limits.

Had a chat with my, excellent, consultant Dr W about the way forward post RFA (which might not be for another nine months or so!). She says we may go for 24hr PH monitoring to see what my reflux is like and then possibly go for fundo if warranted.

Next RFA will be in January (insurers willing) since we both decided that December wasn't conducive to an altered diet.

Might be a long journey but should be worth it in the end. Having seen where else it might go I can put up with Chicken Cup-a-soup for a while.
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bobdigi
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Quote bobdigi Replybullet Posted: 26†Sep†2017 at 1:47pm
From what I've read the only people who state only 2 sessions of RFA are ever required are the people selling it.
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chrisrob
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Quote chrisrob Replybullet Posted: 26†Sep†2017 at 2:01pm
It does depend on the size and presentation.

If you have a perfectly smooth epithelium and the Barre's is concentrated in one small, easily determined area, it's theoretically possible to completely eradicate it in one go.
In reality, even after EMR has removed all the lumps and bumps, the surface may not be regular enough and require another pass.
It's also not advisable (patient comfort etc) to tackle too large an area at one go, so a large segment may require a number of sessions.
In practice, our consultant gastroenterologist who performs most of these procedures at our hospital, finds most patients typically require 3 sessions.
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steelee
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Quote steelee Replybullet Posted: 26†Sep†2017 at 4:19pm
How many sessions do you have before it's no longer viable.
I have had 5 and 2 EMR's and still have 75% of Barrettís remaining and it's defiantly getting far more uncomfortable with each session. If things continue as they are I could need another 15 sessions but I have no idea of what the oesophagus can withstand, a question I will need to ask next month when Iím due for no 6 I think?
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GrahamB
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Quote GrahamB Replybullet Posted: 28†Sep†2017 at 6:41pm
My specialist has consistently said four or five sessions for C8M8.

On the recovery front - all pretty good execpt for last Saturday when I had a total lapse of concentration and took a (large) bite of a danish pastry less than 48 hours after the session. My O remined me that I was an idiot within a few seconds!
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